February 2007 - Posts

• EDDNAL

  Description The EDDNAL (European Directory of DNA Diagnostic Laboratories) database contains a small collection of European diagnostic laboratories involved in the diagnosis of thalassaemias. Read More... Posted Thursday, February 15, 2007 9:09 AM by Carsten | (Comments Off)

• ITHANET

  Description ITHANET is a Euromediterranean network of research centres conducting molecular and clinical research of thalassaemia and related haemoglobinopathies. The consortium of ITHANET comprises all major European research institutions active in the Read More... Posted Wednesday, February 14, 2007 12:20 PM by Carsten | (Comments Off)

• ORPHANET

  Description ORPHANET is a database of rare diseases and orphan drugs for the general public. Its aim is to contribute to the improvement of the diagnosis, care and treatment of patients with rare diseases. Orphanet includes a rare diseases encyclopaedia, Read More... Posted Wednesday, February 14, 2007 9:16 AM by Carsten | (Comments Off)

• SAFE

  Description The SAFE (Special Non-Invasive Advances in Fetal and Neonatal Evaluation) Network started on 1 March 2004, and is set to run for a period of 5 years. It is sponsored under the EU Framework 6 programme and has 50 partners from 19 countries Read More... Posted Tuesday, February 13, 2007 12:30 PM by Carsten | (Comments Off)

• TCRN

  Description TCRN is an acronym for Thalassemia (Cooley's Anaemia) Clinical Research Network. The purpose of the TCRN is to accelerate research in the management of thalassaemia, standardise existing treatments, and evaluate new ones in a network of clinical Read More... Posted Monday, February 12, 2007 12:32 PM by Carsten | (Comments Off)